The PHA4GE Ethics and Data Sharing Platform continues to grow as more people are joining and participating in the community.
Several projects have kicked off from the platform (e.g. building frameworks and undertaking a systematic review on risks and benefits in health genomics studies in Africa, and a project to define a meta-data standard for ethical research data), which has led to these projects including collaborators from different countries and continents and different professional, educational and disciplinary backgrounds. This has made the sharing of ideas, expertise and the content of the projects richer, more diverse and more inclusive.
Community members are also reaching out asking for advice and sourcing the opinions and expertise of other community members on different topics, for example ethical issues that should be considered when sharing pathogen
sequence data.
We invite anyone interested to join us on this interactive platform, there is a short process to create your user account and then you can join our conversations and initiate or participate in projects about ethics and data-sharing.
by Anja Bedeker, on behalf of the PHA4GE Ethics and Data Sharing Working Group
Wastewater Contextual Data Specification
6th February 2025
The PHA4GE Wastewater Contextual Data Specification Package is scoped for data collection and sharing (within organizations, within networks and if desired, with public repositories) of both pathogen-agnostic genomics contextual data and genotypic attributes (such as antimicrobial resistance genes) derived from amplicon-based, WGS, and metagenomic sequencing approaches.