The PHA4GE Ethics and Data Sharing Working Group brings together ethicists, researchers, public health practitioners, and data stewards to address ethical and data governance challenges in genomic public health. We focus on building a collaborative, equitable, and inclusive global ethics community that develops practical, real-world solutions and increases capacity for ethics research and responsible data sharing.
We are a responsive working group that will address ethics, equity and data governance issues as they arise in our collaborative networks. If you have an ethics, equity or data governance issue that you would like us to consider, please do send us an email and we will be happy to call on our working group to help you find practical solutions.
This Working Group creates a shared space where ethics and data-sharing challenges can be discussed openly and addressed collaboratively.
Key focus areas include:
Ethics and data governance in genomic public health and research
Responsible data sharing, access, and reuse
Applied ethics solutions for real-world public health challenges
Inclusive and equitable research practices, including global participation
Community-driven consensus on emerging ethics issues
Key activities and deliverables include:
A virtual Ethics and Data Sharing Platform for discussion, collaboration, and problem-solving
An “Ask an expert” Q&A forum for ethics review, consent, and data-sharing questions
Opportunities to initiate and join collaborative research projects, including equitable co-authorship
Publications, marker papers, and other research outputs addressing high-priority ethics issues
If you work on ethics, governance, public health, genomics, data sharing, or policy — or want to help shape a more inclusive research culture, this Working Group offers a unique opportunity to collaborate and make impact.
By joining, you can:
Contribute to a global, interdisciplinary ethics community
Help develop practical, applied ethics solutions
Collaborate on publications, grants, and training activities
Support equitable participation, including early-career researchers and underrepresented groups
Help shape the future of ethics and data governance in public health genomics
Inception: April 2020
# of Members: 40+
SANBI
SANBI
Contact: [email protected]
This publication introduces the PHA4GE Microbial Data-Sharing Accord, a set of consensus principles to guide the responsible secondary use of microbial data. The Accord provides clear, accessible guidance to promote trust, protect against misuse, and support evidence-based public health research and surveillance.
This publication presents a practical framework to support the identification and implementation of benefit sharing in research programmes. Using a socioecological model and case studies from genomics research during the SARS-CoV-2 pandemic, the framework helps researchers intentionally incorporate equitable benefit sharing from project inception.
The PHA4GE Ethics and Data Sharing Platform brings together researchers, ethicists, and practitioners to engage in informed discussion and collaboration on ethics and data governance. Designed as a respectful and transparent space, the platform supports shared learning, funding opportunities, and the development of ethical research practice.
Olakulehin Adebusuyi | Faculty of Pharmacy, University of Ibadan,Nigeria | Nigeria
Abel Anzaku | Global Health and Infectious Diseases Control Institute | Nigeria
Judith Arachie | Global Health and Infectious Diseases Control Institute | Nigeria
Rosa Lea Baldevarona | Sustainable Development, Research, and Innovation | Philippines
Anja Bedeker | SANBI-UWC | South Africa
Rebekah Butterfield | Oracle Health | United States
Clare Chukwudebelu | Afromed Academy of Medical Research and Innovation | Nigeria
João Costa da Silva | Lawyer at Deloitte Legal | Portugal
Chiara Crestani | Institut Pasteur | France
Nicole Dagata | Centre for Genomic Pathogen Surveillance | United States
Suereta Fortuin | Stellenbosch University | South Africa
Ndahafa Frans | Namibia Institute Of Pathology | Namibia
Sam Halabi | Georgetown University School of Health and Law Center | United States
Amanda Hall | University of Washington, Microsoft Research | United States
Nicola Holden | Scotland’s Rural College | United Kingdom
Michelle Kasudi | International Livestock Research Institute (ILRI) | Kenya
William Kivului | Kenya Medical Research Institute | Kenya
Elyssa Liu | Centre for Outbreak Preparedness, Duke-NUS Medical School | Singapore
Phoenix Logan | Chan Zuckerberg Initiative | United States
Duncan MacCannell | CDC | United States
Alice Matimba | University of Zimbabwe College of Health Sciences | Zimbabwe
Catrin Moore | St George’s, University of London | United Kingdom
Sarah Mwangi | Africa Centers for disease control and prevention | Ethiopia
Soe Yu Naing | Utrecht University | Netherlands
Elicana Nduhuura | Mbarara University of Science and Technology | Uganda
Vicky Nembaware | UCT | South Africa
Aitana Neves | SIB Swiss Institute of Bioinformatics | Switzerland
Michelle Nichols | Medical University of South Carolina | United States
Pernille Nilsson | University | Denmark
Isla O’Connor | Wellcome Sanger Institute | United Kingdom
Rachel Ogidan | Genomic Surveillance Unit, Wellcome Sanger Institute | United Kingdom
Ngozi Otuonye | Nigerian Institute of Medical Research Yaba | Nigeria
Tina Pfefer | US FDA / GenomeTrakr | United States
Sunita Sara Gill Shamsul | Sarawak Infectious Disease Centre | Malaysia
Mercury Shitindo | Africa Bioethics Network | Kenya
Büşra Betül Şimşek | Yıldız Technical University | Turkey
Jamie Southgate | PHA4GE | South Africa
Yimei Sun | NUS | Singapore
Nicki Tiffin | UCT | South Africa
Mochammad Fadjar Wibowo | SingHealth Duke-NUS Global Health Institute | Singapore
The final day of the #PHA4GECon featured training initiatives to insightful Working Group breakout sessions.
The PHA4GE Ethics and Data Sharing Working Group has a mandate to improve the practical application of ethical principles to research and …
Amidst an atmosphere charged with anticipation and excitement, the first day of the PHA4GE Conference burst onto the scene, igniting minds and sparking conversations that promised to shape the future of pathogen genomics, globally.
